{"id":1126,"date":"2021-01-25T11:11:33","date_gmt":"2021-01-25T11:11:33","guid":{"rendered":"https:\/\/www.knob.blog\/?p=1126"},"modified":"2021-02-08T21:28:23","modified_gmt":"2021-02-08T21:28:23","slug":"you-never-see-it-coming","status":"publish","type":"post","link":"https:\/\/www.knob.blog\/penile-cancer-journal\/you-never-see-it-coming\/","title":{"rendered":"You never see it coming."},"content":{"rendered":"\n

This is a piece I wrote in January 2021 for Macmillan<\/a>, one of the largest cancer charities in the UK. Macmillan do incredible work for families living with cancer.<\/p>\n\n\n\n

Cancer is going to affect half of us <\/h6>\n\n\n\n

We all know someone that\u2019s had cancer, but we never really think it\u2019s going to happen to us.  At least, I certainly didn\u2019t.<\/p>\n\n\n\n

In 2019 I was 40.  Married with 2 children, 2 cats and a comfortable life in the English Home Counties.  I was quite fit, wasn\u2019t a smoker or much of a drinker.  I just didn\u2019t fit the stereotype of a cancer patient.<\/p>\n\n\n\n

By the late summer, I\u2019d developed a bit of an itch.  There\u2019s no point in keeping you in suspense any longer, I had an itchy penis.<\/p>\n\n\n\n

I didn\u2019t think much of it initially, as uncircumcised men do just itch every now and again.  Then I discovered a painful lump on the head of my penis, and the smelly, rusty brown discharge started.<\/p>\n\n\n\n

If you have ever met a man, we\u2019re quite\u2026 sensitive about our penises.  It\u2019s a bit of a thing we have.  If anything goes wrong, it needs to be sorted.  Immediately.<\/p>\n\n\n\n

I\u2019d always considered myself a winner in the great lottery of life<\/h6>\n\n\n\n

I grew up a 6\u20196\u201d, rugby playing, charming, brilliant, (and modest, naturally) force of nature.  Spending my formative years in a post-industrial English port town, opportunities were plentiful and my penis had always done a sterling job for me.<\/p>\n\n\n\n

I\u2019d previously had a couple of little issues to resolve.  My balls swelled up like a balloon once, with a mystery infection.  The phimosis came and went too, but it never caused me any trouble.  I\u2019d actually been thinking of getting a circumcision for a while, just to tidy things up.  I hadn\u2019t done anything about it though.<\/p>\n\n\n\n

Over the next few days, my foreskin thickened, and I could feel a dull ache in the right side of my groin.  I was beginning to get quite concerned.  So, I went to my GP.<\/p>\n\n\n\n

After a cursory check, he made up his mind pretty quickly.  I was misdiagnosed with balanitis and sent away with some creams that I couldn\u2019t use.  A week or so went by, and nothing changed so I went back.<\/p>\n\n\n\n

My lump was bigger, my skin was thicker and the marble sized lump in my groin had started to show.  I asked for a referral, but was sent to the sexual health clinic instead.  More negative tests and another two weeks went by, and my GP was out of ideas.  So I booked a private consultation.<\/p>\n\n\n\n

It took the doctor about ten seconds to say \u201cyou have cancer\u201d<\/h6>\n\n\n\n

It felt as though a huge hole in the ground had opened up, and I was being dragged into the abyss.  The doctor was talking, but I was somewhere else.  I walked out with another referral, staggered through the hospital and sat in the car.<\/p>\n\n\n\n

All my emotions arrived at once, and I broke down.  An hour went by before I called my wife to tell her the news.  Talking brought clarity, and my gallows humour lifted the mood. <\/p>\n\n\n\n

I pulled myself together and made an appointment with Professor Nick Watkin, a leading urological surgeon, and expert in penile cancer.  He quickly restored my faith in UK healthcare, walked me through the plan, and I was under the knife just two days later.<\/p>\n\n\n\n

It was at this point, I knew I needed to share my story<\/h6>\n\n\n\n

I wanted to take control, to stop any guessing or gossip from family and friends.  I\u2019d tell the people close to me everything I knew, whether they wanted it or not.  It was just easier that way.  So I started posting on Facebook to keep everyone up to speed.<\/p>\n\n\n\n

By the time I went under the knife, the tumour on my penis was like a thick juicy earthworm, and the one in my groin had grown to three inches across.  The surgery to remove them took around 3.5 hours and left me with a circumcision, less lymph nodes, a drain bottle and plenty of stories.<\/p>\n\n\n\n

By the time I had surgery to remove more nodes on the other side of my groin and pelvis, it was confirmed that I had stage 3, grade 3 cancer.  So, in the height of the COVID-19 pandemic, I was sent to The Royal Marsden for chemotherapy, and radiotherapy treatment to the groin.<\/p>\n\n\n\n

Treatment hasn’t been without complications though<\/h6>\n\n\n\n

I was hospitalised in January 2020 after getting a drain infected.  I\u2019ve had to manage stage 2 lymphedema in my legs.  I\u2019ve had moist skin desquamation from the radiotherapy, and my skin has changed colour.  At one point my balls were the size of an outstretched hand and my penis was buried in a mass of skin, like a bashful jabba the hutt.<\/p>\n\n\n\n

It\u2019s now January 2021, and they haven\u2019t found any new disease for a year.  I\u2019ve started running again, and I\u2019m determined to get as fit and strong as I was in 2019.  I\u2019ve been given a second chance at life, so I\u2019m taking on new challenges to see how far I can go.<\/p>\n\n\n\n

My Facebook posts started to get really popular, even with people I hadn\u2019t spoken to or seen since school.  Everyone wanted to tune in for the latest!  So I started https:\/\/knob.blog<\/a> to share my experiences with whoever wanted to read them.  Since then, I\u2019ve evolved my blog into a source for all things penile cancer, getting fit again, as well as the story that got everyone hooked of course.<\/p>\n\n\n\n

Oh, my cock?  Yeah, that’s magic now.  We all love a happy ending, after all.<\/p>\n\n\n\n

I’ve also written a similar story<\/a> for Cure Today, the big American cancer magazine and website<\/a>. Plus one for OncoLink<\/a> too – an incredible resource for cancer information by The University of Pennsylvania<\/p>\n","protected":false},"excerpt":{"rendered":"

This is a piece I wrote in January 2021 for Macmillan, one of the largest cancer charities in the UK. Macmillan do incredible work for families living with cancer. Cancer is going to affect half of us We all know someone that\u2019s had cancer, but we never really think it\u2019s going to happen to us.  […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"hide_page_title":"","_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","footnotes":""},"categories":[6],"tags":[22],"yoast_head":"\nYou never see it coming. ><\/title>\n<meta name=\"description\" content=\"Here's a potted version of my cancer journey, that I wrote for Macmillan cancer care in 2021. 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