{"id":1215,"date":"2021-02-04T14:53:46","date_gmt":"2021-02-04T14:53:46","guid":{"rendered":"https:\/\/www.knob.blog\/?p=1215"},"modified":"2021-02-17T15:04:27","modified_gmt":"2021-02-17T15:04:27","slug":"scanxiety-2","status":"publish","type":"post","link":"https:\/\/www.knob.blog\/penile-cancer-journal\/scanxiety-2\/","title":{"rendered":"Scanxiety"},"content":{"rendered":"\n

This is a blog piece I wrote for Macmillan<\/a>, a leading UK cancer charity. I wanted to explain about what scanxiety means to me, and how it feels every time a scan comes around.<\/p>\n\n\n\n

It\u2019s been going on for a while now.  It always follows the same routine.
Somehow, subconsciously, I just know it\u2019s coming.  I start to tense up, and my sleep starts to suffer.  The sleep I manage to get, I spend grinding my teeth.<\/p>\n\n\n\n

When I\u2019m awake, I\u2019m just snapping at people or being irrational.  Cancer does that to you.  All that broken sleep ages you too.  \u201cOh you look tired?\u201d  \u201cYeah Karen, I haven\u2019t slept in three weeks\u201d
It\u2019s not actually \u2018the cancer\u2019 though.  It\u2019s the fear of it coming back.<\/p>\n\n\n\n

Why do I feel like this?<\/h6>\n\n\n\n

I\u2019ve been in remission for a year now, and I\u2019m writing this a day before my next scan.  It will be the 8th surveillance scan I\u2019ve had since they last found any new disease.<\/p>\n\n\n\n

When I was first diagnosed with penile cancer in 2019, it was all a bit of a whirlwind.  By the time my staging was complete, I was told that I had stage 3, grade 3 cancer.<\/p>\n\n\n\n

It had spread from the primary tumour in my penis to the next set of lymph nodes in my groin.  After having nodes removed in my pelvis as a precaution too,  I got the incredible news that there was no sign of disease.  Or, that as some like to say…  that I was cancer free.  <\/p>\n\n\n\n

Next I went through a few weeks of chemoradiation to give me the best chance that cancer wouldn\u2019t come back.  It was tough, but I knew it was worth it.<\/p>\n\n\n\n

It\u2019s just great to be me again, while it lasts<\/h6>\n\n\n\n

The scans and the months go by, and in the gaps between, you grow in confidence.  Things get back to normal, and the smile comes back to your face.  You\u2019re not a victim anymore.<\/p>\n\n\n\n

Then, just as you\u2019re thinking how great the world is, the call comes… \u201chello, your consultant has asked us to contact you about coming in for a scan.  How is three weeks this Thursday?\u201d<\/p>\n\n\n\n

Well, it\u2019s terrible actually.  I never want another scan in my life.  But you know you have to.  You know that speed is everything when it comes to cancer.  The earlier you catch it, the better the chances of killing it.<\/p>\n\n\n\n

But as soon as that appointment is made, the clock starts ticking.  The little arguments start at home, lashing out at the people you love.  The silly frustrations at the simplest tasks, and being overcome with emotion about the supermarket being out of edamame beans.  The dull aches in your sides and the pit of your stomach that mimic a tumour.<\/p>\n\n\n\n

So many questions<\/h6>\n\n\n\n

What if it\u2019s come back?  What if they didn\u2019t find all the microscopic disease?  Maybe the surgery wasn\u2019t radical enough, or if the cancer took a detour and it\u2019s growing further up my body?  What happens then?<\/p>\n\n\n\n

It took less than three months to grow a tumour the size of a tennis ball in my groin.  What if it\u2019s in my liver or something?  That\u2019s the right side of my body.<\/p>\n\n\n\n

Am I being irrational?  Of course I am.  But cancer does that.  It destroys your belief system, and what you think is normal.  Simple logic becomes difficult to handle.  Surely I\u2019d know if it had come back?  I only ever ask myself the questions that I know I can\u2019t answer.<\/p>\n\n\n\n

I just want to be me again<\/h6>\n\n\n\n

The really crazy thing, is that I\u2019m not scared of the treatment.  I\u2019m not bothered about operations, or spending time in a chair getting chemo.  I\u2019m not worried about the radiotherapy.  The side effects are the worst part, but I can handle those too.  I know what to expect.  <\/p>\n\n\n\n

But it\u2019s the disruption that bothers me.  My cancer puts everyone\u2019s lives on hold, and everything has to revolve around me.<\/p>\n\n\n\n

I\u2019m supposed to be a parent, and a husband, and a leader.  People depend on me to be there, to be involved.  More than anything, I really want to be there.  I want to be me.<\/p>\n\n\n\n

That\u2019s why I hate scans, because I know that I\u2019m only ever \u201cI have some bad news\u201d, from taking me away from the best job in the world.<\/p>\n\n\n\n

I also wrote a similar piece for leading US cancer magazine cure today, which you can find here.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

This is a blog piece I wrote for Macmillan, a leading UK cancer charity. I wanted to explain about what scanxiety means to me, and how it feels every time a scan comes around. It\u2019s been going on for a while now.  It always follows the same routine.Somehow, subconsciously, I just know it\u2019s coming.  I […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"hide_page_title":"","_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","footnotes":""},"categories":[6],"tags":[22],"yoast_head":"\nScanxiety ><\/title>\n<meta name=\"description\" content=\"Scanxiety is a huge deal for cancer patients. The waiting to be scanned, waiting for results and the big question hanging over us every 3 months. What if it's come back? 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